Alzheimer's Disease Resources
National Institute on Aging Alzheimer's Disease Education and Referral Center (ADEAR)
The U.S. Congress created the Alzheimer's Disease Education and Referral (ADEAR) Center in 1990 to "compile, archive, and disseminate information concerning Alzheimer's disease" for health professionals, people with AD and their families, and the public. The ADEAR Center is operated as a service of the National Institute on Aging (NIA), one of the Federal Government's National Institutes of Health and part of the U.S. Department of Health and Human Services.
Phone: 800-438-4380
http://www.nia.hih.gov/Alzheimers
Alzheimer’s Disease Cooperative Group (ADCS)
The Alzheimer's Disease Cooperative Study (ADCS) was formed in 1991 as a cooperative agreement between the National Institute on Aging (NIA) and the University of California San Diego. The ADCS is a major initiative for Alzheimer's disease (AD) clinical studies in the Federal government, addressing treatments for both cognitive and behavioral symptoms.
Contact: brainlink@ucsd.edu
www.adcs.org
Alzheimer’s Association
The Alzheimer's Association is the leading, global voluntary health organization in Alzheimer care and support, and the largest private, nonprofit funder of Alzheimer research. Our Mission: to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Phone: 800-272-3900
www.alz.org
Alzheimer’s Foundation of America
The Alzheimer's Foundation of America was founded by a consortium of organizations to fill the gap that existed on a national level to assure quality of care and excellence in service to individuals with Alzheimer's disease and related illnesses, and to their caregivers and families. Our mission is: ”to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.”
Phone: 866-232-8484
www.alzfdn.org
American Health Assistance Foundation
The American Health Assistance Foundation (AHAF) is a registered 501(c)(3) non-profit organization that funds research seeking cures for Alzheimer's disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies.
Phone: 800-437-2423
www.ahaf.org
Parkinson's Disease Resources
National Institutes of Health, NINDS Parkinson’s Disease Information Page
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH).
Phone: 800-352-9424 or 301-496-5751
www.ninds.nih.gov
The Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s.
Phone: 800-708-7644
www.michaeljfox.org
Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is working for the nearly one million people in the U.S. living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services.
Phone: 800-457-6676 or 212-923-4700
www.pdf.org
Parkinson’s Action Network
PAN is the unified voice of the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.
Phone: 800-850-4726 or 202-638-4101
www.parkinsonsaction.org
National Parkinson Foundation
The National Parkinson Foundation (NPF) is a leading national organization with an extensive grassroots network of Centers of Excellence, chapters and support groups in the United States, Canada and internationally. NPF has a singular focus on improving the quality of care in Parkinson’s disease.
Phone: 800-327-4545
www.parkinson.org
PD Trials
PDtrials is a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. Central to this effort is providing information to help people with Parkinson’s learn more and make informed decisions about participating in clinical studies.
Phone: 800-457-6676
www.pdtrials.org
The Parkinson Alliance
The Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease.
Phone: 800-579-8440 or 609-688-0870
www.parkinsonalliance.org
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them.
Phone: 212-875-8312
www.wemove.org
American Parkinson Disease Association
American Parkinson Disease Association was founded to "ease the burden and find a cure" for Parkinson's disease. APDA raises funds for researchers whose work shows promise and hope of new breakthrough.
Phone: 800-223-2732 or 718-981-8001
www.apdaparkinson.org
PD Pipeline Project
The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process. Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial participation and accelerate approved treatment options. New PD treatments are followed from pre-clinical development to approval in the Pd Pipeline Database found on our website.
www.pdpipeline.org
Parkinson’s Research Foundation
The Parkinson Research Foundation is a nonprofit health organization providing Parkinson's research, information and advocacy. The mission of the organization is to cure Parkinson's and to improve the lives of all people affected by the disease.
Phone: 941-870-4438
www.parkinsonresearchfoundation.org
Northwest Parkinson’s Foundation
Mission: To establish optimal quality of life for the Nortwest Parkinson’s community through awareness, education, advocacy and care.
Phone: 877-980-7500
www.nwpf.org
The Parkinson's Institute and Clinical Center
The Parkinson’s Institute and Clinical Center (PI) is America’s only independent non-profit organization that provides basic and clinical research, clinical trials and a comprehensive movement disorder patient clinic for Parkinson’s disease (PD) and related neurological movement disorders, all under one roof. Our mission is to find the causes, provide first class patient care and discover a cure.
Phone: 800-655-2273 or 408-734-2800
www.thepi.org
Parkinson's Resource Organization
PRO is a 501(c)(3) non-profit charitable organization that provides group and individual support to those making the journey through Parkinson's.
Phone: 877-775-4111 or 760-773-5628
www.parkinsonsresource.org
The Parkinson's Unity Walk
The Parkinson's Unity Walk (PUW) began in 1994 through the dedicated efforts of patients, families, support groups, and friends who were affected by Parkinson's disease. Their main goal is to raise awareness and funds for research to find a cure for Parkinson's.
Phone: 866-789-9255
www.unitywalk.org
Bachmann-Strauss Dystonia & Parkinson Foundation
The Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF) was founded in 1995 as a nonprofit 501(c)(3) by Louis Bachmann(1916-2000) and Bonnie Strauss. The Foundation was started to encourage new research and scientists in the fields of dystonia and Parkinson disease, and to heighten awareness about the diseases
Phone: 212-682-9900
www.dystonia-parkinsons.org